Teething, Eating, Gaining, and a New Baby _____

So our little guy finally actually has a tooth coming through. He was super fussy all evening on Sunday, and when I looked in his mouth I saw the little bump on his bottom gum! He's been pretty comfortable since then with Tylenol. It's pretty cute though; he keeps running his tongue over the spot like, "Hey, what's this?"

And... Owen is EATING! Not a ton, and nowhere near enough calories to get rid of the G-tube, but he eats! He's been eating the Gerber Graduates puffs, and doing a little bit better with baby food lately. It's also fairly common for him to take about 4 ounces of formula for us at a time. So, frustrating as it is that we still have the tube, I really do think we'll be without it someday.

It's actually a good thing we still have the tube, because Owen has been upped to 36 ounces a day. Which doesn't sound like a lot, until you think about how many calories that is. His formula is mixed at 30 calories per ounce, so that's over 1000 calories per day! Formula mixed the normal way (and breast milk) is about 20 calories per ounce. All this may actually be having an effect, because when I weighed him this morning he was closing in on 15 pounds! It would be great if that's real, but I'm slightly concerned that he may be retaining fluid. After all, last week he only weighed 14 pounds. So I'll be keeping an eye on his weight to see if this is just a random jump (he tends to have those) or if it's something to be concerned about.

So our little guy has definitely been reaching some milestones and doing better all the time. And soon we'll have to be more specific than saying "our little guy." That's right - Owen's having a baby brother! I'm at 22 weeks and feeling good. We're thinking about names but haven't settled on anything for sure yet (and we probably won't until Bean's born.) He's been pretty active lately - it's both exciting and nauseating to feel him moving around in there!

We're getting ready for our first Christmas in our new house. Owen loves the lights, of course, and is enthralled by the train we have around the Christmas tree. A few days ago he "helped" Mark look at the ads in the paper. Okay, so he mainly grabbed the papers and waved them around a lot. So I think he'll have fun with the wrapping paper. Speaking of which, I need to get to it! I wish presents wrapped themselves sometimes. =)

A Healthy Baby...

Is exactly what it appears we're having! Our ultrasound today showed all of the appropriate parts, formed the appropriate ways, and in the appropriate places. It also showed one particular part that tells us the gender of the baby. Yes, we're going to tell. No, not today! We're waiting until we have a chance to tell our families before announcing it here.

Our experiences with having children have obviously been anything but typical. The doctor looking over the ultrasound (the same one that delivered Owen) said, "Well, I can't find anything wrong with this kid." It was music to our ears, but I'm sure it's not exactly the phrase uttered by most OB/GYNs upon analyzing ultrasound images! During our first ultrasound with Owen, I was excited during it, and terrified after. This time I was terrified during it, and excited after. Given this good result, we are not having amniocentesis performed this time. We will simply wait and have the new baby's chromosomes analyzed once he/she is born.

Meanwhile... Baby Owen has an ear infection. =( He had a fever on Monday, and his temp came down out of fever range but has remained high since. He's been cranky and wanting to be held constantly. I talked to his pediatrician's office Monday, and they weren't concerned. We saw the cardiologist this morning; he looked in Owen's ears and declared the left one fine, but the right one he couldn't see in because of too much wax. He wasn't concerned either. However, once I got to my regular OB's office (yes, we had 3 doctor appts scheduled today,) he had developed a discharge from his right ear. I took him over to an urgent visit center and sure enough, the pediatrician thought Owen's eardrum had ruptured. Hence the discharge, fever, and irritability. Poor bubby. So now we have two antibiotics to give him. Hopefully he'll be out of the miserable stage soon! It's heartbreaking to see him so sad and in pain.

On the plus side, though, our cardiology appointment went great! The cardiologist says Owen's doing very well. We get to discontinue one of his meds altogether, and go down to once a day on another one. So we're back to the schedule we had before this surgery. Also, Owen officially gained 12 ounces in less than a month! This is huge for him, and the cardiologist was really happy with that. So hopefully we can continue these positive trends, and get Owen feeling better soon! We want our bubby to be able to enjoy all the fun Christmas events!

Let it Snow!

We woke up this morning to a beautiful blanket of snow on the ground, and more on the way! It's still coming down fairly heavily; we expect 2 inches total by tomorrow. Not very much, but enough to start getting in the spirit of Christmas. It just isn't Christmas to me without snow!

Our little man is currently lying on the floor, drifting off to sleep. We spent the day with family yesterday, and he only had about 4 30-minute naps between 8am and 10pm; there was just too much going on! So he's been catching up on his sleep.

I think his weight is trending a little better. The day of his surgery, he was weighed at 13 pounds even, and two weeks later at his cardiology appointment, he still weighed 13 pounds even. At that point, our scale said he was 13 pounds 7 ounces. Now it says 14 pounds, so hopefully that means he's gained at least half a pound. We'll see on Wednesday.

Speaking of Wednesday, we have lots going on then. Owen is up first with a cardiology appointment in the morning. Then he and I trek off to my regular OB/GYN for a monthly checkup. And later that afternoon, Mark will meet up with us for an appointment with the perinatologist. This is the big appointment: our ultrasound to get a good look at whether Bean is healthy. I know there are no guarantees, even if all the "parts" are there. So we may still opt to have amniocentesis, or we may decide to wait until the baby is born and have a blood test drawn then. I don't think we will ever have another child without having its chromosomes tested. There are quite a few families in the trisomy 10q group who didn't have diagnoses for their children until they were a year or older, simply because those children were physically healthy. It wasn't until they started falling behind on developmental milestones that they noticed a problem. The luxury of having a prenatal diagnosis for Owen is that we knew he would fall behind, and we can take steps now to help him progress and keep him from developing bad habits in the meantime.

Developmentally, we're about to reach a huge milestone. That's right - no more sternal precautions as of tomorrow!!! We are VERY excited about this. Owen has become more and more steady holding up his head, and he wants SO badly to sit up and roll over. However, we haven't been able to let him do anything that would put pressure on his chest. So he hasn't been on his tummy in several weeks, and we can't hold him with our hands supporting his chest. It really has set him back, because he can't develop the muscles he needs to sit properly without being on his tummy and rolling over. Hopefully we will make some good progress over the next few weeks.

We set up our Christmas tree on Friday, and Owen adores it! Of course, he loves anything that lights up. Santa has Owen's Christmas all set, and Mark and I are interested to see what Owen thinks of Christmas overall. It was difficult to keep Santa from going overboard, because there are just so many toys that look like fun for Owen, but I think we did a good job.

I'll definitely update again on Wednesday to let you all know about Bean. But don't be surprised if you don't hear the gender of the baby just yet; we probably won't tell our family until Saturday, so look for news next weekend!

We're Back...

...from our blog hiatus! We've been busy adjusting to life at home after surgery, which has been great. Owen's first follow-up with cardiology after surgery went very well, and his next one will be December 3rd. At that one, we expect to be able to drop one or two of his meds. That's also the day of our big U/S to take a good look at Baby Bean. We are praying that Bean is healthy; I already want them to look at the heart first! We are also looking forward to finding out whether Bean is a boy or a girl.Owen has been a little more cranky lately. We think he's cutting teeth, although we can't see anything coming in yet. He is *terrified* of doctors/nurses; he screamed through his entire cardiology appointment and tried to hide behind my shirt. We've been working more on feeding, but we're not getting too far. So far, he hates sweet potatoes, carrots, green beans, pears, peaches, and applesauce. The two foods we've found that he will willingly put in his mouth and gnaw on? Tootsie rolls and Oreos. Fabulous. He hasn't gained anything at all since before his surgery, even though we're feeding him more than before. He gets about 130 kcal/kg/day, which should be plenty for him to gain well, but he just isn't. There's only so much you can concentrate his formula, and so much you can put in his tummy in a day. I don't know what we're going to do next. His length and head circumference are still following the curve, but his weight has dropped off dramatically.

I'm including some pictures from his surgery and after; he's really looking older lately!

Home, Here We Come!

It's official: we're going home tomorrow! It would have been today, but I requested an evaluation from a speech therapist, and they're not here on weekends. So we'll have that tomorrow, and then we'll be discharged.

You'd think I'd have learned by now, but I'm still marveling at how God *always* exceeds my expectations. I mean, post-op day #5 and ready to go home?? Our Lord is mighty indeed!

We give thanks to God for Owen, for His healing touch, for our surgeon Dr. Abraham and his staff, for the nurses here at St. Vincent, and for our families, friends, and workplaces, all of whom have helped us weather this week. Please lift up a prayer of thanksgiving for these intentions on our behalf. We *really* want God to know how much we appreciate these blessings!

Say What?

This will be a short update; I'm waiting for Mark to get out of the shower so we can go turn in our key.

Today we will be moved to a regular pediatric floor. Owen now only has his EKG leads, saturation monitor, two IVs, and his surgical drain attached to him. He still is sounding pretty congested, but it's staying out of his lungs.

The big surprise of the day came out of the visit we had from our cardiac surgeon this morning. He busted out with, "I think we'll be ready for discharge Sunday or Monday, let's shoot for Monday." To which I replied, "As in THIS Monday?!" Apparently, yes. He's probably being a little overly ambitious; I imagine we'll really be discharged more like Wednesday. Still, it's great to hear he's doing so well. I overheard rounds this morning, and the NP presented Owen by saying, "Owen had the Glenn on the 21st and he's really done great since day 1." What awesome words! We are excited for Owen to continue to heal and to get home quickly. After all, he has his first Halloween to celebrate!

The Glenn Update #2

I'm so sorry I didn't get a chance to post last night! I tried several times, but the computer was always occupied (there's only one.)

Owen continues to do superbly! He was extubated yesterday afternoon with no problems. He is down to 1/2 liter on his oxygen, which is great! His lungs continue to sound clear. His pain seems to be generally well-controlled, though it's hard to tell. He hasn't been fed yet, and his arms are tied down out to his sides so he can't get at any of his tubes or wires and pull them out. So even if his pain is controlled, it's easy to imagine that he may be highly uncomfortable and angry! Even so, he's had several calm periods where he just lays there and looks at Mark or me. So we think we're moving in a good direction.

He already looks quite different to me. For the past couple of weeks I had been noticing that his legs looked somewhat purple and mottled. That is completely gone now. His skin looks flesh-toned and perfect! Although it appears he has inherited his mom's fair complexion, poor guy. We'll have to be careful about the sun!

We are spending the day here with Owen at St. Vincent. The plan is to get his Foley catheter out, *possibly* get his art line and cardiac line out, and feedings should start any minute. We're doing low-volume continuous feeds to begin with, to reduce the chances of him vomiting. We're taking it one step at a time, but so far Owen is exceeding expectations all around!